A.J. Walker

Multiple Sclerosis etc

October 2024

Readily Foldable

Went to the Casino gig on Friday, which was wonderful, but it was marred for me and—hopefully—only me by my damn legs. I stood at the front leaning against the rail for over two hours through the Heavy North and Casino sets and didn’t realise until I went to leave that my legs had suffered from all the standing. My legs just folded under me and I could not get to a fully upright position. Thankfully a couple of local gig buddies recognised an issue and a member of staff came over to get me to an external lift rather than having to negotiate the stairs. I am grateful for the assistance of the 02 staff in doing that (and my buddies for alerting them)—it helped enormously.

Rather than struggle to walk to Queen Square for a bus I opted to get an Uber. A nice guy, Mansoor from Stockport, picked me up and delivered me safely home. Just sitting in the taxi had helped and I was soon going up and down the stairs at home with no issues at all. In summary I know my limits now and will no longer stand for a couple of hours without breaking it up with some seated breaks (even if that is just on the floor). It has happened to me before a couple of times—and they were also at gigs. MS sufferers quite famously do struggle with fatigue, most notably in the legs—and boy is it scary and frustrating that you can’t even stand up and feel you are going to fold onto the floor.

Funnily enough I've another new thing I get now; it's an itch near my right elbow. It's a phantom from nerves either in my head or body and it is well weird not being able to scratch an itch.
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